I am tired of everything the universe asks of me

I am tired of patience, or diligence, of seeing the higher purpose

Of opening my arms to catch the bricks of every falling tower

Only to have them crumble in my hands and return to the earth, covering my toes in dust

I am spread across the ground like this leftover rubble

Dirty with regret

My best years are gone

And my future is hidden behind giant clouds and lightning

Yet the universe asks for more patience. More gratitude. More discipline.

I have nothing left and there is another leap to take. So I must tumble myself into the next phase.

I am told: this is greater than the individual course of your fate. But there is so much I don’t understand.

How do I know what to do next if I have never lived this before?

And over and over the answer comes:

Patience. Diligence. You must wait. You must continue.

The last brick falls. The earth swallows every last crumbling stone.

I stand in a bare field, and the universe asks me for faith. She asks me for trust.

I am as angry as a bare root. I am as hardy as a seedling. I am as grieved as a stump. I am as small as a twig.

But in the emptiness I plant my feet

And root

My New Life

This is how it feels to come back to myself


A valley away from where I started out

And I have found home within myself

At last

My soul flickered tenuously, life time to life time

Uncomfortable in my body, carrying a deep knowing of what was to come

Living was like walking a terrible tightrope

But when I finally fell

Somehow I landed on my hands and feet

Hips square to the ground, my nose to the dirt

And I found my place in it all

No more circling

No more agonizing

No more waiting to hear the terrible ending

The only way out of this cycle was through

How in this lifetime did I finally learn discipline and surrender?

How did all the lessons line up this way?

The way my feet press down into the ground is different now

The pattern has ended

I can return to myself

It is over

At last


These are the years that broke me

Broke me with black eyes- black tongue- throat gaping

These are the years I survived

Survived with bones of grey and nerves of white

My fingers prying open what had closed

The ash of each tragedy poured like thick dust from my mouth

There was hardness where there should have been softness

There were leaks of bile and blood where there should have been strength

Dampness eroded my core. Dryness peeled apart my skin.

These are the years that broke me. Years of skeletons, years of gravestones.

Worms grew out from under my nails.

I was muffled by my own corpse. Waiting for early death.

These are the years that broke me. These are the years I pieced myself back together.

Pulling apart each thread in my own fate.

I broke open. Rebuilding cell by cell. Fusing back what fell apart.

These are the years that broke me. That tore me open.

Weighed down by own death. Weighed down by fate.

But I am alive now, and my soul drifts untethered.

The rebuilding

Now I begin to rebuild


Starting from the bones

Starting from the roots

New tendrils spreading out under rocks

Veins curling around organs delicate and white, like lace

The winding spirals of mitochondria

My circulatory system pulsing outward through networks of fungus and soil

Intimately mingling with the moistening tissues

To recharge my life, starting from the deepest places

It will take eternity to heal

It will encompass my entire soul

Now it begins with the smallest budding stems

And a handful of moist earth

Growing upwards, pushing outwards,

Tendril after tendril unfolding, reaching for the sky

I Died Every Day

For a year my body died every day.

Thunder rolled in my chest. My brain stuttered fast.

For a year my tears would not stop. My breath flew away from my chest. Dread circled in my gut like a spiny shark.

For a year my body died every day.

And I was not brave. My spirit fluttered weakly. I cried hot tears as I felt each moment pass- and each moment was my last. Endlessly in a horrifying spiral.

Every breath the final breath. Every second for a year. I said goodbye to the world. I said goodbye to my life.

I could not explain it. I could not put words to it.

Every moment I was dying. Without my deepest concentration I knew my breath would leave forever- my heart would beat into oblivion.

For a year my body died every day. But now I am alive.

So I ask myself: how do I come back from the dead?

How do I haul my soul out of the grave?

How I Healed MCAS

I was diagnosed with mast cell activation syndrome in 2016 and I am now 95% symptom free from MCAS and histamine intolerance. It took me two full years of 100% dedication to my health to do. I also know my healing journey will continue on into the future but I can happily say that I feel healthier than ever and I’m living a better, happier life than I ever thought possible, even before I got seriously ill. This is my story and how I went about healing.

Quick disclaimer that I am not providing medical advice! This is just my personal story to share what worked for me and to prove that healing from supposedly incurable chronic disease is ABSOLUTELY possible!!!

My history and how western civilization and medicine destroyed my health:

My immune system and gut biome was likely compromised from birth, for unknown reasons. I likely have a genetic predisposition towards histamine related disorders because my father also has a lot of allergy and other histamine disregulation symptoms. I also believe it is possible that I was harmed by vaccines as an infant. And of course there are a host of other unknown factors that could have contributed to my susceptibility to chronic disease.

I developed skin issues (“excema” and possible viral rashes) and food allergies as a very young child. I also had jaundice as an infant and ear infections as a toddler, which I had to be on a month long course of antibiotics for, further compromising the diversity of my gut bacteria.

Growing from infancy into childhood, my food allergy list continued to slowly expand. Every few years I would start to become allergic to another food. I also would have strange mystery “24 hour illnesses” where my body would get a high fever for 24 hours and then be fine.

As puberty hit, I developed severe anxiety and obsessive/compulsive tendencies. I started getting intense carb and sugar cravings, and would feel nauseous and get headaches if I didnt eat every few hours. I had an appendicitis at age 13, giving me a massive dose of antibiotics and body trauma. I went on the birth control pill at age 14 which likely began a serious disruption my endocrine system. I began getting recurrent throat and sinus infections that year as well. Each time they gave me a dose of antibiotics. Finally, at age 15, they removed my tonsils to prevent further infections, giving me another major dose of antibiotics and further body trauma. I stopped getting these recurrent throat infections but it did not address the deeper issues.

I continued to experience severe food allergies and anxiety into young adulthood. In my early 20’s, I started getting recurrent vaginal yeast and bacterial infections. Every time they put me on an anti fungal or anti biotic. But they kept coming back. I eventually got a staph infection in my vagina. I asked why this was happening to me. They could not explain it. They only gave me more antibiotics. I also started developing extremely painful periods- so painful I would often throw up from how intense the pain of it was. I finally decided to go off the birth control pill and see if that helped. It did help! I stopped getting as many vaginal infections, although I still often felt imbalance and discomfort, especially during sex. As an alternate form of birth control, I decided to get my tubes tied. This gave me another massive dose of antibiotics and further body trauma, and probably caused long term hormone disregulation, although I was never warned of that potential.

It was about the age of 25 that things started getting more acute. I got shingles what felt like out of nowhere. I also started having allergic reactions to foods that I was supposedly not allergic to. It would only happen once every couple months and I mostly ignored it as an anomalous thing since I could not explain it.

At 26 I started feeling increasingly anxious. I had always had constant low grade anxiety but it started getting more intense. This eventually developed into full blown panic attacks that I had never had before. It started happening almost daily. I felt like I was losing touch with reality and asked my therapist if I might be becoming psychotic. My list of unexplainable symptoms kept growing and no one could give me explanations. I felt crazy.

Developing mast cell activation syndrome:

At its worst, by the fall of my 26th year, my list of symptoms was as follows:


Swollen/red/blotchy/sensitive skin


Painful menstruation


Hot flashes

Congestion/stuffy nose/sneezing

Recurrent infections

Itchy eyes


Chemical/fragrance sensitivity

Shortness of breath/air thirst

Anxiety/panic attacks

Emotionally overwhelmed/easily stressed

Overwhelming sense of doom or dread

Recurrent feelings that I was dying



Acid reflux

Food allergies

Histamine intolerance

Brain fog


Dizzy/lightheaded/low blood pressure


Muscle weakness


Swollen lips

Mucusy/tight throat after eating


Tachycardia and heart palpitations

These all came on so slowly and gradually that before I knew it I was in a constant state of terror, having multiple of these unexplainable symptoms every day. It was like the proverbial frog in a pot of slowly heating water.

Desperate, I found an allergy doctor and explained my symptoms. She said she believed that I had Mast Cell Activation Disorder. She said there was really no treatment except to try to avoid triggers and use anti histamine medications daily, and that we could also try a medication called gastrocrom. She said I would likely have symptoms the rest of my life but sometimes she saw spontaneous remission. She could not explain how the disease process worked or why I would have developed it or what would make it go into remission.

I tried to figure out my triggers but I couldn’t. They seemed random to me. So I took Zyrtec, benadryl and ranitidine daily and then eventually the gastrocrom. They didn’t help. In fact, my symptoms continued to get worse.

My introduction to a new path

I was terrified at this point. I had just turned 27. At what I felt like a last ditch effort, I consulted with a local herbalist. I didn’t know anything about functional or alternative medicine and I thought it would probably be a fruitless meeting. I could not have been more wrong. She told me she thought I had “gut dysbiosis” which could explain why I developed this disease. She said she thought it was perfectly possible for me to manage and even heal it through diet changes and herbal medicine. She suggested I start with a low histamine diet, but admitted my problems were out of her scope of practice and suggested I find a naturopath and a nutritionist who specialized in autoimmune disease.

I called around until I found a naturopath who specialized in autoimmune disease. She recommended a nutritionist who specialized in reversing autoimmune and other chronic diseases as well. Ananda Steigler is my naturopath, Mary Ruddick is my nutritionist.

The journey begins

While I was on the waiting list to get in with my new providers, I started a low histamine diet on my own. I could not believe how much of an effect it had. By eliminating all high histamine foods, within a couple of weeks the intensity and frequency of my symptoms went down drastically. I no longer felt an intense sense of dread, I wasn’t getting as many skin issues, and I had fewer heart and respiratory symptoms. I still felt very sick and had a lot of symptoms, but this was a clear sign to me that I was on the right track. I decided at this point to also eliminate all drugs and alcohol use, gluten, sugar, refined vegetable oils, and processed foods. I ate low histamine gluten free grains, vegetables, fruits, meats and healthy fats only. Only whole foods, no packaged foods. I ate only pasture raised and grass fed meat, buying them on the day they were delivered to the store to reduce the histamine levels. I started freezing all my leftovers to reduce histamine accumulation. I stopped eating at restaurants entirely to avoid any accidental intake of inflammatory foods.

I also started detoxing my life in more ways than just food. I wanted to get rid of everything in my life that could be disrupting my endocrine system or compromising my immune system. I changed all my personal products, from make up to hygiene to cleaning. I looked on ewg.org to buy non toxic make up brands. I started using Vani products (an allergy safe personal hygiene brand) at first, and then as my sensitivities went down switched to very basic plant and lard based soaps with no extra fragrances, preservatives or other ingredients. I recommend looking up lists of common toxic chemicals in personal hygiene products and avoiding them. For cleaning I started using vinegar, salt, baking soda, washing soda, boric acid, and plain soap. This included for washing my clothes. Eventually I have added some pure essential oils in as well as my sensitivities have reduced.

I also tried many different herbs and supplements at this point to help heal my gut and reduce my histamine load, but I found that almost everything I tried made my symptoms flare up. I knew I had to heal my gut and reduce my histamines to stabilize before I could really start healing. But everything that was supposed to help seemed to make it worse.

Naturopathic Medicine

After that initial improvement I had very much plateaued. I was still in a really bad place when I finally got into see my naturopath. She did all sorts of tests on me. She tested my genome (using 23andme and strategene), my hormone levels, my thyroid (TSH, T4 free, T3 free, and reverse T3), CBC panel, lymphocytes, vitamin D, iron, etc. She found that my levels of pretty much everything were too low, except my lymphocyte levels were high! The conclusion: I have a suppressed immune system, poor nutrient absorption due to gut dysbiosis, and some type of chronic infection. Whatever the chronic infection was, she thought it was likely at the root of my mast cell activation.

Unfortunately, my body was still highly reactive and even herbal remedies for treating chronic infections were too much for how fragile I was. She suggested I consult with the nutritionist first and just start taking a basic regiment of vitamins, particularly a B complex (which I reacted to and had to switch to a “B minus” supplement at first), D, C, magnesium, trace minerals, and digestive enzymes. She also had me start taking SAM-E to address my COMT mutation, but other wise said my genes didn’t look too bad.

She also wanted me to start addressing lifestyle issues such as sleep and chronic stress. I’ve always had a keyed up nervous system related to a lot of stressful and traumatic life events and it was important to reset my nervous system as part of my healing practice. Meditation, a regular sleep schedule, saying no to any strenuous activities, taking a break from my intensive exercise routine, and other relaxation exercises such as TRE, regular mental health therapy and coloring became important parts of my daily life. Eventually as my fatigue improved a little and I started doing gentle yoga 4-5 days a week.

Nutritional Medicine

I had to do two things: seal the lining of my leaky gut, and flush out pathogenic bacteria to address the gut dysbiosis. I will be very clear about this: when healing severe illness with nutrition, you cannot “cheat”- it will set back all of your progress. This is not just like a generally healthy person adopting a healthier diet. Food is your medicine. If you are not 100% diligent, it will not provide you the same results.

My nutritionist suggested I start by reducing my grain intake and upping my vegetable, meat and fat intake. She also had me eliminate nightshades/lectins and reduce oxalates to help with inflammation and support my body processing out toxins. Eventually she wanted me to go off grains completely in order to accelerate gut healing, and seriously lower my intake of plant toxins, but it was important to detox from them slowly so not to shock my system. She also agreed that I likely had chronic infections in my gut causing my mast cell activation. These bad bacteria feed on the sugars in grains, fruits and starchy vegetables and I would need to stop eating them to flush them out. She also had me start juicing fennel, celery, cilantro, parsley, ginger, and thyme to help reduce my histamine levels and stabilize.

Detoxing off grains was brutal for me. Even though I did it slowly I still got extremely ill from it. I had extreme fatigue and muscle weakness for months and could barely walk. But I stuck with it, and eventually I started to stabilize.

At this point, I started eating all of my vegetables puréed with water and fats in soups. This was extra gentle on my gut to promote healing. I also started intermittent fasting to give my gut a bit of break so that it could spend more time repairing itself.

Naturopathic medicine continued

At this point it was the fall of my 27th year, about 9 months into my healing journey. I was taking my vitamins, off of grains, lectins, and lowered my oxalates, and just eating puréed veggies, pasture raised meats, and healthy fats. I still ate some fruit but had reduced my intake to one serving per day. I also started slowly introducing a Sporebiotic probiotic supplement. My gut had healed enough I was able to now take a full B complex without reacting to it.

My symptoms had definitely lessened and were not as frequent, but I was still very ill and having flare ups in addition to just feeling weak, icky and tired. I ended up doing a GI MAP test from Diagnostic Solutions Laboratory. The results were far worse than anything I imagined. I had multiple chronic bacterial and parasitic infections. My naturopath said I was stable enough now that we needed to start anti microbial herbs to treat these underlying infections. I took herbs for parasites, bacteria, and viruses on and off for a year. I also took acyclovir for awhile, the only pharmaceutical I was on during this process, because my lymphocyte levels would not go down and my naturopath wanted to try something more intense. I got rid of so many pathogens. On and off for years I detoxed these bugs. I also started detoxing practices more: doing saunas (my blood pressure issues had started to get somewhat better at this point and it felt safe), dry brushing, activated charcoal, epsom salt soaks and castor oil packs.

GAPS diet and year 2

I turned 28. I had been healing for a year. While I was doing the herbal treatments, my histamine intolerance had started lessening a little due to all the gut healing I had been doing. My nutritionist thought I was ready to start a low histamine version of the GAPS diet. I cut out all fruit and starchier veggies, and I didn’t add them back in until I was at the last stage of the protocol, and even then only still lower glycemic ones. I remained off lectins and lower oxalates for the whole protocol.

For a low histamine version of the GAPS diet I just ate all the parts of it that I could tolerate with my histamine issues and left out the rest. I focused mostly on just eating a lot of meat broth and pastured/grass fed or wild caught meat every day. It helped me improve so much!

This was also a BRUTAL detox however and I got much worse before I got better. I became incredibly ill for months. I could hardly walk, and I felt like a zombie because the brain fog, fatigue and depression got so bad. But I knew it was all the bad bacteria in my body dying off, so I stuck with it.

Suddenly, four months into the GAPS diet, something changed. I started gaining weight for the first time in over a year (I had become very thin at the onset of my acute illness), and felt like my energy was coming back. I started eating some nutrient dense, higher histamine foods like organ meats, avocado, mushrooms and eggs with no major problems. My nutritionist said I was finally growing enough of a healthy gut lining that I was absorbing nutrients better and not reacting to food as much.

Hitting a Wall

I had now been healing for over a year and a half and had made a lot of progress. My symptoms had significantly reduced by this point and I was starting to eat lots of medium and even high histamine foods without symptoms. Even when I did react to a new food at first I found that if I gently pushed my body by continuing to eat small amounts over time, eventually the reactions would subside. I also found that my seasonal allergies had completely disappeared! This was an unexpected side bonus to my healing journey.

But I felt like I had hit a wall. I was better- but still getting annoying intermittent flare ups of old symptoms and I was still struggling frequently with brain fog, fatigue, skin issues, etc.

At this point, my nutritionist and naturopath suggested I lower my vegetable intake enough to be solidly in ketosis at all times, while still on the GAPS diet, to see if we could boost my mitochondrial health (basically the energy efficiency of my cells). I reduced my vegetable intake and upped my meat and fat intake again.

We also decided to test for heavy metal toxicity since that was the only possible root cause we hadn’t addressed. I did a heavy metals urine challenge with Doctors Data lab.

It turned out, I had toxic levels of thallium and lead in my system. I started taking Prussian blue for the thallium, and began chelation therapy for the lead. Again, it was another brutal detox. IV chelation therapy put me into a huge flare up. I became extremely tired, depressed, and brain foggy again, with major painful skin symptoms. I passed the two year mark in my healing journey while still in this flare up.

I turned 29. One morning, about a month after finishing my chelation therapy, I woke up and just had a distinct inner sense that something was different. My head felt clear, I had energy, I felt light in my body, my skin cleared up, and I felt so happy and motivated and inspired. There was a distinct shift in my nutritional desires at well. Vegetables didn’t sound that good anymore, and I was constantly craving meat. So I switched to a mostly carnivore diet, while still eating small amounts of vegetables when I felt like it. Everything positive I had already started feeling suddenly was amplified by ten. I knew that I was better! All my last, lingering symptoms, mental and physical, were dissipating. I started exercising more intensively again, I started sleeping only 6-8 hours a night without fatigue, began a strength training routine. My appetite surged! I started “mostly” carnivore by eating up too 200g of protein a day. My body was voracious for the nutrients in meat and I gained some weight again as my body took it all in. My histamine intolerance was completely gone- I started eating high histamine foods without any reactions. My period finally came back that summer! A great sign of increased health.

I started power lifting. I travelled. I went on epic hikes. My energy was sky high!

Eventually my appetite evened out and I found an upper limit to a sustainable protein intake, about 110-120g a day. I lost the weight I had gained and found a healthy sustainable place.

Over the next year I started having symptoms of oxalate dumping. Occasional loose, sandy stools, or white crystals in my stools, some non mast cell related skin rashes, and cloudy urine. This was a piece of the puzzle I hadn’t even considered before. I learned more about oxalates and how they are often not processed well by people who have a compromised gut from antibiotic use. I continue to avoid high oxalate plant foods for the most part and every time I have a dumping episode I feel better and better afterwards.

I currently continue to eat meat based, focused on nutrient density and nose to tail style carnivore, but also eat low toxin plants here and there. I will eat some higher carb plant foods some days when I feel like I want it, including fruit and starchy veggies occasionally. I eat eggs, mushrooms, seaweed, garlic, onions, raw dairy, and sauerkraut regularly.

The concept of “healed” is complex. But the reality is, I don’t get symptoms hardly at all anymore, and I don’t really react to anything specific in the world anymore.

I will never go back to a conventional life or way of eating. I know too much now and health is my biggest priority.

I’m sure my journey will continue into the future and my healing will progress. But overall I feel amazing. My mental health has never been better. I feel motivated and inspired every day. My body feels incredible. I feel like a totally new person, born again.

So this is how I put my illness into remission. It was long, hard, diligent work, but absolutely possible. Healing from severe illness is possible but only if you prioritize it in your life and completely dedicate yourself to a new way of living.

Summary of the causes of my illness:

-possible vaccine injury as an infant and then again as a young adult

-chronic viral infection from young childhood

-frequent antibiotic and anti fungul use from toddler to young adulthood (probably 20+ doses in total)

-likely undiagnosed food intolerances through childhood

-artificial hormone toxicity from birth control pills

-toxicity from cleaning, personal hygiene, and beauty products

-high carb/sugar diet for most of my life

-chronic stress and overstimulation from societal, familial and self imposed expectations

-acute traumatic experiences as a teen and young adult

-use of alcohol and recreational drugs as a teen/young adult further compromising my immune system

-chronic untreated bacterial, fungal, and parasitic infections

-heavy metal toxicity from unknown sources

-oxalate build up/difficulty processing oxalates

Summary of my healing journey timeline:

Year 1:

-low histamine diet

-cut out gluten, processed vegetable oils, and sugar

-detoxed my hygiene, cleaning, and beauty products

-prioritized sleep schedule, nervous system relaxation and regulation activities

-addressed vitamin and deficiencies

-SAM-E for gene support

-cut out grains and lectins/nightshade vegetables and most oxalate heavy vegetables, switched to a vegetable, meat, fruit and fat based diet

-ate all my vegetables puréed with healthy fats, did intermittent fasting

Year 2:

-detoxing practices: sauna, dry brushing, castor oil packs, etc.

-herbs for bacterial infections: neem, monolaurin, berberine

-herbs for parasitic infections: wormwood and cloves

-herbs for viral infections: isatis, lomatium, licorice root, andrographis, acyclovir (pharmaceutical)

-herbs and supplements for heavy metal detox: cilantro, activated charcoal, allicin, IV chelation therapy (pharmaceutical), r-lipoic-acid , n-acetyl-cysteine

-herbs and supplements for immune system boosting: cordyceps, reishi, spiralina, Chlorella, whey protein isolate (only introduced these when histamine intolerance had significantly decreased)

-low histamine version of the GAPS diet to accelerate gut healing

-ketogenic version of the GAPS diet to increase mitrochondrial and metabolic health

Year 3:

-nose to tail, meat based keto diet to boost strength/energy

-eliminated high oxalate foods

-added fermented foods to continue building microbiome diversity

-started power lifting for increased metabolic and immune system strength.

Im in year 4 now! And the journey continues…

Losing Two Years

This is how I lost two years

I fast forwarded into now

This is how I lost you in those years

I lost us both inside myself.

I tried to explain: my brain is full. There is no room.

It was like living in a house with one room lit

Like sailing away into the fog

Like drifting down into the dust

Like disintegrating into ash.

I tried to explain: this is not who I am. This is not who I’ve always been.

Two years I lost.

They slipped away from me

Like holding onto melting snow.

I try to explain: for two years I wasn’t there.

Mind slow. I could not learn. I could not see.

The road washed away beneath my feet

The seasons changed around me.

This is how I lost two years

My head submerged in thick water and mud.

How it is

This is how it is

This is what it’s like

I’ve reached my late 20’s, and the floors are never clean enough

I can’t keep up with the grass- it keeps growing- it’s seeds spreading everywhere while I sleep facing away

Spiders sneak through the old siding of the house- they nibble at the backs of my legs while I dream.

Friday morning they canceled my yoga class so I climbed the butte downtown

The freeway whoosh drives the thoughts of my meditation up to the hills crowned in smoke

They have been drowning in it all summer

Each day the sun burns orange, brightening the night

But every surviving oak tree still twists up proud into the sky seeking safer air

And my heart aches with love for this valley as it burns, as it hates us, as sickens me.

This valley will boil me alive some day. But where else would I go to die by earth’s hand?

This is how it is

This is what it’s like

Here I am: the age I always wanted to be

Is this what I wanted?

Cheap house, cheap clothes, cheap couches. Cheap everything.

And my body tired far beyond its age.

Yet I have made a life for myself where most of the time

I am okay

I don’t get touched when I don’t want to be

Except once a year in a dream

I grow to accept the failings of my body

The healing of my body

The inevitable imperfections of this life

Questions hover around my future

Will the garden flourish?

Will the spiders ever stop biting me in my sleep?

Will I be forced to flee this burning valley someday?

Every year I feel the sun get hotter

Every day I feel my body struggle

Every summer the wind chokes me

Yet somehow, more than ever

I find peace

I Don’t Trust My Body

It is so hard for me to trust my own body. Some people feel easy in their bodies. They assume their body will automatically do the things it needs to take care of itself. They know their hearts will speed up when they run and slow when they lie down. They believe their lungs can handle the exertion of being in motion, they have felt that their nerves can take the stress of a hard day, they are assured that their livers can sift through the toxins they encounter and will protect them. They live their lives without thinking much about their bodies and how they function. They assume it will all be fine. Their bodies will take care of themselves.

I do not feel this way about my body. I never have. I have always thought that there was something deeply wrong with my body. I have always had an idea in my head that I will die young, and strangely. That people will scratch their heads in surprise when they hear about it, and how it happened. I have always been convinced that I need to be careful with my body, more than other people. I can’t trust that I will not die at any moment. I feel that I must tiptoe around my body, that I should subject it to too much or it might just break down. It could all just collapse at any moment: I track my heart beat to make sure it stays steady. I listen to my own breathing all day to make sure it doesn’t stop. I have lived my life in this fear, outside of the natural flow others find in their bodies.

I look back to find the deep roots of this problem, emotional and physical, that is now manifested. My parents never trusted me growing upno matter what I did to try to prove it. They always told me that trust is earned, but somehow I could never earn it. They didn’t trust my abilities, they didn’t trust my motivation, they didn’t trust my desires. Eventually, when faced with an impossible situation, there is nothing to do but internalize the very problem you are faced with. No matter what I did I would not be able to make my mother happy. If I was perfect, by her standards, she would be happy. But no body can ever be perfect. And eventually I turned this in on myself- finding all the imperfections in my own body.

I was betrayed by my own culture. My body was compromised from early on but no one intervened. My body cannot tolerate the expectations that are normal in this society: to eat foods that are toxic to us, to soak up the poisons in our shampoos and body washes, to live a life drenched in stress, to cope with the every day violence that is synonymous with womanhood. And no one helped me. My body was left to desperately survive on it’s own- so what could it do except internalize that is is inadequate? But it is not. It struggles like everyone else’s- the fact that it can put up with less of the stress that we are all under is a sign of it’s own strength, a sign of it’s own ability to sift right from wrong, to set clear boundaries with myself and my own culture and say NO, this is not how I was meant to live. Nobody knew how to help me until I was deep into autoimmune disease and I sought answers on my own.

What was my body supposed to learn from a world that didn’t help me as I struggled, except that I cannot trust myself, and there is no hope for me? The message was that I must suffer alone- I cannot trust my body to take of myself, and I cannot trust others to take care of my body.

So now these messages manifest in my disease. My body over reacts to everything. And I cannot trust it. It responds strangely and suddenly, without warning the inflammation starts and I feel like I am dying. Every fear I’ve ever had has been realized in this illness.

And yet, somehow, little by little, I am beginning to heal. I try to pull my illness out of me from the roots. Reaching down even farther, seeing if I can find those firm and stubborn seeds deeply imbedded in my cells, in my psyche, in my spirit. And the truth I know is that to heal I must open. I must allow. I must trust. I must forgive every betrayal of my own body.

Things I Will Never Forget (What I Learned From My Illness)

There are things I would never have known otherwise.

There are things that will always be different now.

There are things I find hard to explain:

All the things I have learned from my sickness.

Like how it tastes to eat soup for every meal every day for eight months straight.

Like the time it takes to read every ingredient on everything ever (that day I spent hours in the hygiene aisle, just wanting to wash my hair).

The way I learned to say “I’m sorry, I can’t” so well that it started to ache in my mouth.

The feeling that washed over me when I left the doctor appointment, clutching close the new list of things that were wrong.

How I became so tired of evaluating each possible treatment, of trying to decide what to do next.

The sinking dread of knowing: I’m just rotting away. The fervent praying- the wild hoping- can I stop it? Is it possible to heal?

The deep weakness that took over my body- as if I am taking each step with weights locked around my ankles (the day in the market I couldn’t lift that jar of coconut oil I wanted and had to ask for help).

There are things I will never take for granted again, like how much energy it actually takes to get up from my bed and walk to the kitchen, or the bathroom, or to press the gas pedal down in my car.

What it feels like to lie face down on my bed, only to feel my heart start pounding my whole body, wondering if it will ever stop?

Like how it is to have my skin burn and ache every time you tried to touch me tenderly.

All the dreams I’ve had of possible futures: all the longings I’ve had for the past (remember when I was cute and light and carefree in my body?).

When I try to explain myself- my every quirk- my every issue. How much is too much? Every question somehow leads back to my illness.

The terror I felt when I looked at the one page single column list of the last foods I could still tolerate.

And my face, my soft skin covered in blisters- in hives- in a swollen red flush. The itching pain. Afraid of your touch.

Resting. Eating. Sleeping. Appointments. Supplements. Nothing else. A never ending cycle.

The deep feeling of exhaustion as it seeps into each corner of me. Like my body is breaking and here I am, stuck inside.

The smell of meat broth boiling. Being told I smell like celery.

The hours spent reading health blogs. Autoimmune instagram inspiration. Nutrition research. Medical journals. Crying in frustration- trying to understand it all. Will this be the thing that saves my life?

Counting calories. Tracking nutrients. Taking foods out. Adding them back in. Taking them out again. Falling asleep at 8:30.

There are so many things I have learned. There are so many things I will never forget.

Like what is the true meaning of patience. Of diligence. Of despair. Of surrender.

Like how to say no. To everything.

Like how to strategize my precious energy: what will I need for the next three hours so I won’t have to get up again?

How it feels to know my body is flooded with invaders. Overrun with them. And in response it’s shutting down.

What it’s like to wake up with my legs hot and weak. Like they are filled with fire and jelly.

Time passes. Months. A whole year of sickness. And another. How many years will I lose?

What it’s like to be afraid of everything: sunshine. Cold. Fragrance. Pollution. Leftovers.

There is a deep ache. There is an unspeakable grief. Why me? Why my life? Trying to make sense of it. Trying to find some meaning in it.

The long game. The waiting. The hoping. The affirmations, repeated endlessly to outweigh my fears: I will heal. I will heal. I will heal.

The things I have lost. People. Places. Pastimes. Familiarity. Wondering if anyone will want me like this?

The things I regain- the indescribable joy at the smallest victories. My body moving strongly again. Climbing a hill. Running a block. Doing one thing, and then another. How much I missed the piney smell of the mountains.

Will I ever see the stars from deep wilderness again?

Time passes. Changes unfold. My life comes back to me- little by little. Sliver by sliver.

But no matter how much I heal, there I things I will never take for granted again.

There are things I will never forget.