Escaping My Life

Is it possible to escape your own life? To slip out of it like a bad habit or peel it away like a sunburn?

My life piles on itself and grates like bone stacked on bone. And I am stuck between the teeth of earth and sky. I am gazing up into the jaws of the universe. I am riding on the tongue of my own manifestation.

I long for a space I will not create for myself. I am caught in a loop. I am spit out and tumbled back suddenly. But I always know what is coming.

And I always know what it means. The clouds tell me. I cannot hide from the whispers in the air. Each sign piles on top of the other like compost mulching together.

And I am caught underneath it all, as quiet and small as a worm.

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Frozen

I stumbled on an invisible wall and fell to my knees.

I wail against it with hard fists. But the wall digs deeper into the ground with stony heels- with callous soles- and refuses to budge.

Here in the deep layers of me there is a mountain as course as concrete. My nerves are wrapped in cold resistance.

I can feel along the edges of it, but I cannot pull it down or break it apart. My hands are left covered in flakes of concrete and clay.

Some days I find the smallest crack, and I can peer down into the underbelly of myself- but the path descends down into the dark forever.

Still: I breathe, and I grow into the space.

Finding Myself Again

Is this the place I can find myself again?

No. This is the place where everything I know has crumbled.

And I prayed for it. I pushed open the heavy door of my own transformation. I sought it out myself, against the pull of fate. And I keep each piece of my evolution clamped tight in my fists.

But there is no end to it. Like when I climb long hills in wet forests, waiting for the tree line to open on a high windy crest-

But the trail just keeps unfolding under me. The path goes on endlessly.

In the bay below me a thousand year old fish laughs. His knowledge is effortless.

Everything here is waiting. Waiting for the shift. Holding its breath before the next change.

Everywhere I go I see Gods. But they stand frozen. They do not speak to me.

Everything I find is another message: the white heron in the marsh, the barred owl on the road, the young buck mottled white.

I see them but there no words, no explanations.

Just a quiet challenge. Just a methodical pull towards something deeper.

Every moment, tile by tile, the walls of my ego are stripped bare.

Take away everything I know to be true. Perhaps if I keep letting go, I will finally find where I am meant to be.

I Died Every Day

For a year my body died every day.

Thunder rolled in my chest. My brain stuttered fast.

For a year my tears would not stop. My breath flew away from my chest. Dread circled in my gut like a spiny shark.

For a year my body died every day.

And I was not brave. My spirit fluttered weakly. I cried hot tears as I felt each moment pass- and each moment was my last. Endlessly in a horrifying spiral.

Every breath the final breath. Every second for a year. I said goodbye to the world. I said goodbye to my life.

I could not explain it. I could not put words to it.

Every moment I was dying. Without my deepest concentration I knew my breath would leave forever- my heart would beat into oblivion.

For a year my body died every day. But now I am alive.

So I ask myself: how do I come back from the dead?

How do I haul my soul out of the grave?

The First Love After You

The first love I felt after him-

It was when our eyes coming together told me how deeply I had been broken open and emptied out.

I know because in the moments we move together I can feel my skin tug apart and my chest leak an amber colored syrup like thick sap

And with each muscled contraction of my heart there is a pump of pain- a surge of heat, like i am leaping off a cliff a thousand times.

Yes, I am doing it again.

I flake the dirt off my knees.

Six years of falling. And I have finally reached the ground.

I ache for a wild love. A love where we learn how to share bile. To trade back and forth between our mouths the acid that washes into our throats from the deepest places. Burning our tongues with the sharpness of our stories.

But it will not be you.

Six years I fell. And I’ll fall again.

Here I will be once more, brushing the dirt from my knees. Left back at the beginning. Broken open. Emptied out. Ready again. Until my time folds in on itself.

How I Healed MCAS

I was diagnosed with mast cell activation syndrome in 2016 and I am now 95% symptom free from MCAS and histamine intolerance. It took me two full years of 100% dedication to my health to do. I also know my healing journey will continue on into the future but I can happily say that I feel healthier than ever and I’m living a better, happier life than I ever thought possible, even before I got seriously ill. This is my story and how I went about healing.

Quick disclaimer that I am not providing medical advice! This is just my personal story to share what worked for me and to prove that healing from supposedly incurable chronic disease is ABSOLUTELY possible!!!

My history and how western civilization and medicine destroyed my health:

My immune system and gut biome was likely compromised from birth, for unknown reasons. I likely have a genetic predisposition towards histamine related disorders because my father also has a lot of allergy and other histamine disregulation symptoms. I also believe it is possible that I was harmed by vaccines as an infant. And of course there are a host of other unknown factors that could have contributed to my susceptibility to chronic disease.

I developed food allergies as a very young child. I also had jaundice as an infant and ear infections as a toddler, which I had to be on a month long course of antibiotics for, further compromising the diversity of my gut bacteria.

Growing from infancy into childhood, my food allergy list continued to slowly expand. Every few years I would start to become allergic to another food. I also would have strange mystery “24 hour illnesses” where my body would get a high fever for 24 hours and then be fine.

As puberty hit, I developed severe anxiety and obsessive/compulsive tendencies. I started getting intense carb and sugar cravings, and would feel nauseous and get headaches if I didnt eat every 3 hours. I had an appendicitis at age 13, giving me a massive dose of antibiotics and body trauma. I went on the birth control pill at age 14 which likely began a serious disruption my endocrine system. I began getting recurrent throat and sinus infections that year as well. Each time they gave me a dose of antibiotics. Finally, at age 15, they removed my tonsils to prevent further infections, giving me another major dose of antibiotics and further body trauma. I stopped getting these recurrent throat infections but it did not address the deeper issues.

I continued to experience my severe food allergies and anxiety into young adulthood. In my early 20’s, I started getting recurrent vaginal yeast and bacterial infections. Every time they put me on an anti fungal or anti biotic. But they kept coming back. I eventually got a staph infection in my vagina. I asked why this was happening to me. They could not explain it. They only gave me more antibiotics. I also started developing extremely painful periods- so painful I would often throw up from how intense the pain of it was. I finally decided to go off the birth control pill and see if that helped. It did help! I stopped getting as many vaginal infections, although I still often felt imbalance and discomfort, especially during sex. As an alternate form of birth control, I decided to get my tubes tied. This gave me another massive dose of antibiotics and further body trauma.

It was about the age of 25 that things started getting more acute. I got shingles what felt like out of nowhere. I also started having allergic reactions to foods that I was supposedly not allergic to. It would only happen once every couple months and I mostly ignored it as an anomalous thing since I could not explain it.

At 26 I started feeling increasingly anxious. I had always had constant low grade anxiety but it started getting more intense. This eventually developed into full blown panic attacks that I had never had before. It was happening almost daily. I felt like I was losing touch with reality and asked my therapist if I might be becoming psychotic. My list of unexplainable symptoms kept growing and no one could give me explanations. I felt crazy.

Developing mast cell activation syndrome:

At its worst, by the fall of my 26th year, my list of symptoms was as follows:

Hives

Swollen/red/blotchy/sensitive skin

Acne

Painful menstruation

Amenorrhea

Hot flashes

Congestion/stuffy nose/sneezing

Recurrent infections

Itchy eyes

Migraines/headaches

Chemical/fragrance sensitivity

Shortness of breath/air thirst

Anxiety/panic attacks

Emotionally overwhelmed/easily stressed

Overwhelming sense of doom or dread

Recurrent feelings that I was dying

Constipation

Bloating

Acid reflux

Food allergies

Histamine intolerance

Brain fog

Hypoglycemia

Dizzy/lightheaded/low blood pressure

Fatigue

Muscle weakness

Insomnia

Swollen lips

Mucusy/tight throat after eating

Tinnitus

Tachycardia and heart palpitations

These all came on so slowly and gradually that before I knew it I was in a constant state of terror, having multiple of these unexplainable symptoms every day. It was like the proverbial frog in a pot of slowly heating water.

Desperate, I found an allergy doctor and explained my symptoms. She said she believed that I had Mast Cell Activation Disorder. She said there was really no treatment except to try to avoid triggers and use anti histamine medications daily, and that we could also try a medication called gastrocrom. She said I would likely have symptoms the rest of my life but sometimes she saw spontaneous remission. She could not explain how the disease process worked or why I would have developed it or what would make it go into remission.

I tried to figure out my triggers but I couldn’t. They seemed random to me. So I took Zyrtec and ranitidine daily and then eventually the gastrocrom. They didn’t help. In fact, my symptoms continued to get worse.

My introduction to a new path

I was terrified at this point. I had just turned 27. At what I felt like a last ditch effort, I consulted with a local herbalist. I didn’t know anything about functional or alternative medicine and I thought it would probably be a fruitless meeting. I could not have been more wrong. She told me she thought I had “gut dysbiosis” which could explain why I developed this disease. She said she thought it was perfectly possible for me to manage and even heal it through diet changes and herbal medicine. She suggested I start with a low histamine diet, but admitted my problems were out of her scope of practice and suggested I find a naturopath and a nutritionist who specialized in autoimmune disease.

I called around until I found a naturopath who specialized in autoimmune disease. She recommended a nutritionist who specialized in reversing autoimmune and other chronic diseases as well. Ananda Steigler is my naturopath, Mary Ruddick is my nutritionist.

The journey begins

While I was on the waiting list to get in with my new providers, I started a low histamine diet on my own. I could not believe how much of an effect it had. By eliminating all high histamine foods, within a couple of weeks the intensity and frequency of my symptoms went down drastically. I no longer felt an intense sense of dread, I wasn’t getting as many skin issues, and I had fewer heart and respiratory symptoms. I still felt very sick and still had a lot of symptoms, but this was a clear sign to me that I was on the right track. I decided at this point to also eliminate all drugs and alcohol use, gluten, sugar, refined vegetable oils, and processed foods. I ate low histamine gluten free grains, vegetables, fruits, meats and healthy fats only. Only whole foods, no packaged foods. I ate only pasture raised and grass fed meat, buying them on the day they were delivered to the store to reduce the histamine levels. I started freezing all my leftovers to reduce histamine accumulation. I stopped eating at restaurants entirely to avoid any accidental intakes of inflammatory foods.

I also started detoxing my life in more ways than just food. I wanted to get rid of everything in my life that could be disrupting my endocrine system or compromising my immune system. I changed all my personal products, from make up to hygiene to cleaning products. I looked on ewg.org to buy non toxic make up brands. I started using Vani products (an allergy safe personal hygiene brand) at first, and then as my sensitivities went down switched to very basic plant and lard based soaps with no extra fragrances, preservatives or other ingredients. I recommend looking up lists of common toxic chemicals in personal hygiene products and avoiding them. For cleaning I started using vinegar, salt, baking soda, washing soda, boric acid, and plain soap. This included for washing my clothes. Eventually I have added some pure essential oils in as well as my sensitivities have reduced.

I also tried many different herbs and supplements at this point to help heal my gut and reduce my histamine load, but I found that almost everything I tried made my symptoms flare up. I knew I had to heal my gut and reduce my histamines to stabilize before I could really start healing. But everything that was supposed to help seemed to make it worse.

Naturopathic Medicine

After that initial improvement I had very much plateaued. I was still in a really bad place when I finally got into see my naturopath. She did all sorts of tests on me. She tested my genome (using 23andme and strategene), my hormone levels, my thyroid (TSH, T4 free, T3 free, and reverse T3), CBC panel, lymphocytes, vitamin D, iron, etc. She found that my levels of pretty much everything were too low, except my lymphocyte levels were high! The conclusion: I have a suppressed immune system, poor nutrient absorption due to gut dysbiosis, and some type of chronic infection. Whatever the chronic infection was, she thought it was likely at the root of my mast cell activation.

Unfortunately, my body was still highly reactive and even herbal remedies for treating chronic infections were too much for how fragile I was. She suggested I consult with the nutritionist first and just start taking a basic regiment of vitamins, particularly a B complex (which I reacted to and had to switch to a “B minus” supplement at first), D, C, magnesium, trace minerals, and digestive enzymes. She also had me start taking SAM-E to address my COMT mutation, but other wise said my genes didn’t look too bad.

She also wanted me to start addressing lifestyle issues such as sleep and chronic stress. I’ve always had a keyed up nervous system related to a lot of stressful and traumatic life events and it was important to reset my nervous system as part of my healing practice. Meditation, a regular sleep schedule, saying no to any strenuous activities, taking a break from my past intensive exercise routine, and other relaxation exercises such as TRE, regular mental health therapy and coloring became important parts of my daily life. Eventually as my fatigue improved I started doing gentle yoga 4-5 days a week.

Nutritional Medicine

I had to do two things: seal the lining of my leaky gut, and flush out pathogenic bacteria to address the gut dysbiosis. I will be very clear about this: when healing severe illness with nutrition, you cannot “cheat”- it will set back all of your progress. This is not just like a generally healthy person adopting a healthier diet. Food is your medicine. If you are not 100% diligent, it will not provide you the same results.

My nutritionist suggested I start by reducing my grain intake and upping my vegetable, meat and fat intake. She also had me eliminate nightshades/lectins and reduce oxalates to help with inflammation and support my body processing out toxins. Eventually she wanted me to go off grains completely in order to accelerate gut healing, but it was important to detox from them slowly so not to shock my system. She also agreed that I likely had chronic infections in my gut causing my mast cell activation. These bad bacteria feed on the sugars in grains and starchy vegetables and I would need to stop eating them to flush them out. She also had me start juicing fennel, celery, cilantro, parsley, ginger, and thyme to help reduce my histamine levels and stabilize.

Detoxing off grains was brutal for me. Even though I did it slowly I still got extremely ill from it. I had extreme fatigue and muscle weakness for months and could barely walk. But I stuck with it, and eventually I started to stabilize.

At this point, I started eating all of my vegetables puréed with water and fats in soups. This was extra gentle on my gut to promote healing. I also started intermittent fasting to give my gut a bit of break so that it could spend more time repairing itself.

Naturopathic medicine continued

At this point it was the fall of my 27th year, about 9 months into my healing journey. I was taking my vitamins, off of grains, lectins, and most oxalates, and just eating puréed veggies, pasture raised meats, and healthy fats. I still ate some fruit but had reduced my intake to one serving per day. I also started slowly introducing a Sporebiotic probiotic supplement. My gut had healed enough I was able to now take a full B complex without reacting to it.

My symptoms had definitely lessened and were not as frequent, but I was still very ill and having flare ups in addition to just feeling weak, icky and tired. I ended up doing a GI MAP test from Diagnostic Solutions Laboratory. The results were far worse than anything I imagined. I had multiple chronic bacterial and parasitic infections. My naturopath said I was stable enough now that we needed to start anti microbial herbs to treat these underlying infections. I took herbs for parasites, bacteria, and viruses on and off for a year. I also took acyclovir for awhile, the only pharmaceutical I was on during this process, because my lymphocyte levels would not go down and my naturopath wanted to try something more intense. I also started detoxing practices more: doing saunas (my blood pressure issues had started to get somewhat better at this point and it felt safe), dry brushing, activated charcoal, epsom salt soaks and castor oil packs.

GAPS diet and year 2

I turned 28. I had been healing for a year. While I was doing the herbal treatments, my histamine intolerance had started lessening a little due to all the gut healing I had been doing. My nutritionist thought I was ready to start a low histamine version of the GAPS diet. I cut out all fruit and starchier veggies, and I didn’t add them back in until I was at the last stage of the protocol, and even then only still lower glycemic ones. I remained off lectins for the whole protocol.

For a low histamine version of the GAPS diet I just ate all the parts of it that I could tolerate with my histamine issues and left out the rest. I focused mostly on just eating a lot of meat broth and pastured/grass fed or wild caught meat every day. It still helped me improve so much!

This was also a BRUTAL detox however and I got much worse before I got better. I became incredibly ill for months. I could hardly walk, and I felt like a zombie because the brain fog, fatigue and depression got so bad. But I knew it was all the bad bacteria in my body dying off, so I stuck with it.

Suddenly, four months into the GAPS diet, something changed. I started gaining weight for the first time in over a year (I had become very thin at the onset of my acute illness), and felt like my energy was coming back. I started eating some higher histamine foods like organ meats, avocado, mushrooms and eggs with no major problems. My nutritionist said I was finally growing enough of a healthy gut lining that I was absorbing nutrients better and not reacting to food as much.

Hitting a Wall

I had now been healing for over a year and a half and had made a lot of progress. My symptoms had significantly reduced by this point and I was starting to eat lots of medium and even high histamine foods without symptoms. Even when I did react to a new food at first I found that if I gently pushed my body by continuing to eat small amounts over time, eventually the reactions would subside. I also found that my seasonal allergies had completely disappeared! This was an unexpected side bonus to my healing journey.

But I felt like I had hit a wall. I was better- but still getting annoying intermittent flare ups of old symptoms and I was still struggling frequently with brain fog, fatigue, skin issues, etc.

At this point, my nutritionist and naturopath suggested I switch to a ketogenic version of the GAPS diet to see if we could boost my mitochondrial health (basically the energy efficiency of my cells). I reduced my vegetable intake and upped my meat and fat intake again.

We also decided to test for heavy metal toxicity since that was the only possible root cause we hadn’t addressed. I did a heavy metals urine challenge with Doctors Data lab.

It turned out, I had toxic levels of thallium and lead in my system. I started taking Prussian blue for the thallium, and began chelation therapy for the lead. Again, it was another brutal detox. IV chelation therapy put me into a huge flare up. I became extremely tired, depressed, and brain foggy again, with major painful skin symptoms. I passed the two year mark in my healing journey while still in this flare up.

I turned 29. One morning, about a month after finishing my chelation therapy, I woke up and just had a distinct inner sense that something was different. My head felt clear, I had energy, I felt light in my body, my skin cleared up, and I felt so happy and motivated and inspired. There was a distinct shift in my nutritional desires at well. Vegetables didn’t sound that good anymore, and I was constantly craving meat. So I switched to a mostly carnivore diet, while still eating small amounts of vegetables when I felt like it. Everything positive I had already started feeling suddenly was amplified by ten. I knew that I was better! All my last, lingering symptoms, mental and physical, were dissipating. I started exercising more intensively again, I started sleeping only 6-8 hours a night without fatigue, and my caloric needs started going up and down drastically, ranging from 1000 calories a day to 2500 calories a day, 80g of protein to 200g of protein a day, 75g a fat to 150g of fat a day, 5g of carbs to 30g of carbs a day, all depending on my activity levels and who knows what else. I just intuitively followed my body’s desires and continued to have amazing results. My histamine intolerance is completely gone- I can eat high histamine foods without any reaction now.

I hate using the word “healed” because I still have some lingering issues. But who doesn’t? I will get very occasional and small skin flare ups. My lymphocyte levels are still higher than I’d like them to be. I’m sure my journey will continue into the future and my healing will progress.

But overall I feel amazing. My mental health has never been better. I feel motivated and inspired every day. My body feels incredible. I’m now power lifting three days a week, doing HIIT three days a week, yoga 3-5 times a week, and going on long hikes usually once a week. I feel like a totally new person, born again.

So this is how I put my illness into remission. It was long, hard, diligent work, but absolutely possible. Healing from severe illness is possible but only if you prioritize it in your life and completely dedicate yourself to a new way of living.

Summary of the causes of my illness:

-possible vaccine injury as an infant and then again as a young adult

-frequent antibiotic and anti fungul use from toddler to young adulthood (probably 20+ doses in total)

-likely undiagnosed food intolerances through childhood

-artificial hormone toxicity from birth control pills

-toxicity from cleaning, personal hygiene, and beauty products

-high carb/sugar diet for most of my life

-chronic stress and overstimulation from societal, familial and self imposed expectations

-acute traumatic experiences as a teen and young adult

-use of alcohol and recreational drugs as a teen/young adult further compromising my immune system

-chronic untreated bacterial, fungal, and parasitic infections

-heavy metal toxicity from unknown sources

Summary of my healing journey timeline:

Year 1:

-low histamine diet

-cut out gluten, processed vegetable oils, and sugar

-detoxed my hygiene, cleaning, and beauty products

-prioritized sleep schedule, nervous system relaxation and regulation activities

-addressed vitamin and deficiencies

-SAM-E for gene support

-cut out grains and lectins/nightshade vegetables and most oxalate heavy vegetables, switched to a vegetable, meat, fruit and fat based diet

-ate all my vegetables puréed with healthy fats, did intermittent fasting

Year 2:

-detoxing practices: sauna, dry brushing, castor oil packs, etc.

-herbs for bacterial infections: neem, monolaurin, berberine

-herbs for parasitic infections: wormwood and cloves

-herbs for viral infections: isatis, lomatium, licorice root, andrographis, acyclovir (pharmaceutical)

-herbs and supplements for heavy metal detox: cilantro, activated charcoal, allicin, IV chelation therapy (pharmaceutical), r-lipoic-acid , n-acetyl-cysteine

-herbs and supplements for immune system boosting: cordyceps, reishi, spiralina, Chlorella, whey protein isolate (only introduced these when histamine intolerance had significantly decreased)

-low histamine version of the GAPS diet to accelerate gut healing

-ketogenic version of the GAPS diet to increase mitrochondrial and metabolic health

Year 3:

-nose to tail, meat based keto diet to boost strength/energy

-added fermented foods to continue building microbiome diversity

-started power lifting for increased metabolic and immune system strength.

The journey continues…

Losing Two Years

This is how I lost two years

I fast forwarded into now

This is how I lost you in those years

I lost us both inside myself.

I tried to explain: my brain is full. There is no room.

It was like living in a house with one room lit

Like sailing away into the fog

Like drifting down into the dust

Like disintegrating into ash.

I tried to explain: this is not who I am. This is not who I’ve always been.

Two years I lost.

They slipped away from me

Like holding onto melting snow.

I try to explain: for two years I wasn’t there.

Mind slow. I could not learn. I could not see.

The road washed away beneath my feet

The seasons changed around me.

This is how I lost two years

My head submerged in thick water and mud.

Lost in You

You are the father I always wanted

You are the lover I always needed.

Next to you I was as calm as a rock.

With you I was as wild as a storm.

So I came back again. After everything. I could not stay away.

I know now: You are no soulmate. And this is no fairytale.

It was a frenzy. A flock of sparrows that swarms and then comes to rest suddenly.

I cannot explain us in moments. It was in the movement we made together:

The flashes of dark. Sudden ruptures of light. Bursts of secret sadism. The pain of pushing and pulling endlessly.

And finally out of my throat black spores erupted all over you.

This was my deepest fantasy, manifested as raw as sunlight. I could never have enough.

So we dug down together, until it collapsed all around us.

And now I am sick of you. I am sick from you.

I will never be so deeply lost in you.

How it is

This is how it is

This is what it’s like

I’ve reached my late 20’s, and the floors are never clean enough

I can’t keep up with the grass- it keeps growing- it’s seeds spreading everywhere while I sleep facing away

Spiders sneak through the old siding of the house- they nibble at the backs of my legs while I dream.

Friday morning they canceled my yoga class so I climbed the butte downtown

The freeway whoosh drives the thoughts of my meditation up to the hills crowned in smoke

They have been drowning in it all summer

Each day the sun burns orange, brightening the night

But every surviving oak tree still twists up proud into the sky seeking safer air

And my heart aches with love for this valley as it burns, as it hates us, as sickens me.

This valley will boil me alive some day. But where else would I go to die by earth’s hand?

This is how it is

This is what it’s like

Here I am: the age I always wanted to be

Is this what I wanted?

Cheap house, cheap clothes, cheap couches. Cheap everything.

And my body tired far beyond its age.

Yet I have made a life for myself where most of the time

I am okay

I don’t get touched when I don’t want to be

Except once a year in a dream

I grow to accept the failings of my body

The healing of my body

The inevitable imperfections of this life

Questions hover around my future

Will the garden flourish?

Will the spiders ever stop biting me in my sleep?

Will I be forced to flee this burning valley someday?

Every year I feel the sun get hotter

Every day I feel my body struggle

Every summer the wind chokes me

Yet somehow, more than ever

I find peace

Finding My Vibration

When I find my own vibration it feels like I am sliding into silky water-

It feels like the crunching deep earth crystals beneath my feet.

In my vibration I glow emerald. The color pulses alive in my chest.

My vibration feels like a silty coat of electricity all over my body. It leaves my skin buzzing.

My frequency. My home vibration. My deepest essence.

This is a place I must return to always. Drifting back to these pools of emerald, to the grey rock that grounds my feet down.

The edges of my heart shine forward and up. I unfold from the core.

My home frequency. My deepest vibration. The wavelength of my spirit. This is the sensation that makes up me.